Sfoglia per Autore
One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases
2020-01-01 Cannizzo, S.; Palla, I.; Pirri, S.; Triulzi, I.; Carta, C.; Taruscio, D.; Turchetti, G.
RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks
2020-01-01 Talarico, Rosaria; Cannizzo, Sara; Lorenzoni, Valentina; Marinello, Diana; Palla, Ilaria; Pirri, Salvatore; Ticciati, Simone; Trieste, Leopoldo; Triulzi, Isotta; Terol, Enrique; Bucher, Anna; Turchetti, Giuseppe
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
2021-01-01 Talarico, R.; Aguilera, S.; Alexander, T.; Amoura, Z.; Antunes, A. M.; Arnaud, L.; Avcin, T.; Beretta, L.; Bombardieri, S.; Burmester, G. R.; Cannizzo, S.; Cavagna, L.; Chaigne, B.; Cornet, A.; Costedoat-Chalumeau, N.; Doria, A.; Ferraris, A.; Fischer-Betz, R.; Fonseca, J. E.; Frank, C.; Gaglioti, A.; Galetti, I.; Grunert, J.; Guimaraes, V.; Hachulla, E.; Houssiau, F.; Iaccarino, L.; Krieg, T.; Limper, M.; Malfait, F.; Mariette, X.; Marinello, D.; Martin, T.; Matthews, L.; Matucci-Cerinic, M.; Meyer, A.; Montecucco, C.; Mouthon, L.; Muller-Ladner, U.; Rednic, S.; Romao, V. C.; Schneider, M.; Smith, V.; Sulli, A.; Tamirou, F.; Taruscio, D.; Taulaigo, A. V.; Terol, E.; Tincani, A.; Ticciati, S.; Turchetti, G.; van Hagen, P. M.; van Laar, J. M.; Vieira, A.; de Vries-Bouwstra, J. K.; Cutolo, M.; Mosca, M.
Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey
2021-01-01 Talarico, R.; Marinello, D.; Manzo, A.; Cannizzo, S.; Palla, I.; Ticciati, S.; Gaglioti, A.; Trieste, L.; Pisa, L.; Badalamenti, L.; Randisi, G.; Del Bianco, A.; Lorenzoni, V.; Turchetti, G.; Mosca, M.
State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases
2022-01-01 Trieste, Leopoldo; Cannizzo, Sara; Palla, Ilaria; Triulzi, Isotta; Turchetti, Giuseppe
An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET
2022-01-01 Bandeira, Matilde; Di Cianni, Federica; Marinello, Diana; Arnaud, Laurent; Cannizzo, Sara; Carta, Claudio; Cornet, Alain; Barril, Sara M; Bulina, Inita; Ferraris, Alessandro; Fonseca, João; Gaglioti, Andrea; Limper, Marteen; Lorenzoni, Valentina; Majnik, Judith; Matucci-Cerinic, Marco; Palla, Ilaria; Rednic, Simona; Schneider, Matthias; Smith, Vanessa; Sulli, Alberto; Søndergaard, Klaus; Ticciati, Simone; Tincani, Angela; Turchetti, Giuseppe; Talarico, Rosaria; Cutolo, Maurizio; Mosca, Marta; Taruscio, Domenica
Exploring disease perception in Behçet's syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach
2023-01-01 Marinello, D; Palla, I; Lorenzoni, V; Andreozzi, G; Pirri, S; Ticciati, S; Cannizzo, S; Del Bianco, A; Ferretti, E; Santoni, S; Turchetti, G; Mosca, M; Talarico, R
| Titolo | Data di pubblicazione | Autore(i) | File |
|---|---|---|---|
| One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases | 1-gen-2020 | Cannizzo, S.; Palla, I.; Pirri, S.; Triulzi, I.; Carta, C.; Taruscio, D.; Turchetti, G. | |
| RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks | 1-gen-2020 | Talarico, Rosaria; Cannizzo, Sara; Lorenzoni, Valentina; Marinello, Diana; Palla, Ilaria; Pirri, Salvatore; Ticciati, Simone; Trieste, Leopoldo; Triulzi, Isotta; Terol, Enrique; Bucher, Anna; Turchetti, Giuseppe | |
| The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET | 1-gen-2021 | Talarico, R.; Aguilera, S.; Alexander, T.; Amoura, Z.; Antunes, A. M.; Arnaud, L.; Avcin, T.; Beretta, L.; Bombardieri, S.; Burmester, G. R.; Cannizzo, S.; Cavagna, L.; Chaigne, B.; Cornet, A.; Costedoat-Chalumeau, N.; Doria, A.; Ferraris, A.; Fischer-Betz, R.; Fonseca, J. E.; Frank, C.; Gaglioti, A.; Galetti, I.; Grunert, J.; Guimaraes, V.; Hachulla, E.; Houssiau, F.; Iaccarino, L.; Krieg, T.; Limper, M.; Malfait, F.; Mariette, X.; Marinello, D.; Martin, T.; Matthews, L.; Matucci-Cerinic, M.; Meyer, A.; Montecucco, C.; Mouthon, L.; Muller-Ladner, U.; Rednic, S.; Romao, V. C.; Schneider, M.; Smith, V.; Sulli, A.; Tamirou, F.; Taruscio, D.; Taulaigo, A. V.; Terol, E.; Tincani, A.; Ticciati, S.; Turchetti, G.; van Hagen, P. M.; van Laar, J. M.; Vieira, A.; de Vries-Bouwstra, J. K.; Cutolo, M.; Mosca, M. | |
| Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey | 1-gen-2021 | Talarico, R.; Marinello, D.; Manzo, A.; Cannizzo, S.; Palla, I.; Ticciati, S.; Gaglioti, A.; Trieste, L.; Pisa, L.; Badalamenti, L.; Randisi, G.; Del Bianco, A.; Lorenzoni, V.; Turchetti, G.; Mosca, M. | |
| State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases | 1-gen-2022 | Trieste, Leopoldo; Cannizzo, Sara; Palla, Ilaria; Triulzi, Isotta; Turchetti, Giuseppe | |
| An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET | 1-gen-2022 | Bandeira, Matilde; Di Cianni, Federica; Marinello, Diana; Arnaud, Laurent; Cannizzo, Sara; Carta, Claudio; Cornet, Alain; Barril, Sara M; Bulina, Inita; Ferraris, Alessandro; Fonseca, João; Gaglioti, Andrea; Limper, Marteen; Lorenzoni, Valentina; Majnik, Judith; Matucci-Cerinic, Marco; Palla, Ilaria; Rednic, Simona; Schneider, Matthias; Smith, Vanessa; Sulli, Alberto; Søndergaard, Klaus; Ticciati, Simone; Tincani, Angela; Turchetti, Giuseppe; Talarico, Rosaria; Cutolo, Maurizio; Mosca, Marta; Taruscio, Domenica | |
| Exploring disease perception in Behçet's syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach | 1-gen-2023 | Marinello, D; Palla, I; Lorenzoni, V; Andreozzi, G; Pirri, S; Ticciati, S; Cannizzo, S; Del Bianco, A; Ferretti, E; Santoni, S; Turchetti, G; Mosca, M; Talarico, R |
Legenda icone
- file ad accesso aperto
- file disponibili sulla rete interna
- file disponibili agli utenti autorizzati
- file disponibili solo agli amministratori
- file sotto embargo
- nessun file disponibile